James had his third sleep study done on December 3rd. This was the first one we were present for so it was quite interesting to see him get hooked up to all of the wires and get wrapped up like a mummy. He didn't seem to mind it much until it came time to try to fall asleep. Once asleep he slept like a champ - or so we thought, apparently he still has some occasional mild apnea where he desaturates a little.
The recommendation was that James be placed on 0.25 liters of oxygen overnight (instead of the 0.5 liters he had been on all day). We followed through with this for maybe a couple weeks and have since taken him off all oxygen. Call us non compliant parents, but we found that everything that went into applying the oxygen (the tape on his face and then just simply tightening it on him without tape) did more harm than good as he tended to get tangled in the tube over night (we were worried he would strangle himself) and the tape tearing his skin. Basically the risks outweighed the benefits for us and he had been off oxygen for several weeks in the hospital and had been fine weeks before he even came home. We still have the oxygen in the house if needed.
We're supposed to follow up with sleep medicine for another sleep study in a few months but I may just say forget it. They said they expect him to have mostly if not totally grown out of the apnea and it was such a production to stay overnight (I mean... for Adam... I said heck no to sleeping with a camera on me all night, creepy much?) and he showed so much improvement since his last study so I think it's safe to say we're over it. Can you tell we're just ready to move on?! It really is so true that parents know best and we feel and have felt for awhile that he is doing great. We've told our pediatrician what we're up to and don't seem to get any negative feedback regarding our decision so we'll just check that oxygen off the list for good.
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